Posts tagged lex

OT doki

today is my third day doing my OT and¬†i feel good! ūüôā ¬†

occupational therapy or OT refers to the use of meaningful occupation to assist people who have difficulty in achieving a healthy and balanced lifestyle.

according to the OT manual that was given to me, occupational therapists work with a variety of individuals who have difficulty accessing or performing meaningful occupations. they work with individuals who have conditions that are mentally, physically, developmentally or emotionally disabling. their goal is to help their clients have independent, productive and satisfying lives. basically, its about helping someone like me, a leukemia patient on remission, get back my independence and enjoy life as normal as possible. isn’t that great?

so my first OT session which lasted for¬†3 hours was¬†on dressing,¬†we called it “dress for success”.¬†¬†i told the therapist that¬†i can put my socks, jockey and pants all by myself but its the upper stuff which i find difficult to put on alone. so he helped me in¬†putting on¬†a patient gown as if i’m¬†going to wear¬† a shirt and then he gave me a small panel with fabric and buttons and¬†he asked me¬†to button up the material like a shirt. it was difficult and painful but i was able to pull it through after 30 minutes. whew!¬†the process was repeated i think 3 times and ¬†after that he asked me to answer a 3-page¬†questionnaire full of abstract figures. whew again!

afternoon of the same day, i was with my physical therapist and i had fun doing some leg exercises and walking. first it was walking with a walker, then with my cane. i was so proud of myself because i was able to walk farther and broke my own record. after taking a break, i had some stress testing and arm exercises. i was exhausted but i felt really good. seeing those sweats coming out made me smile.

second day of OT is on shaving and it was hard. its been a while since i used my hands that way and coordination was difficult at first. i almost cut the side of my lower lip while shaving my moustache. and i felt really sad when we tried shaving a little of my goatee. he he he.

so today is the third day and i¬†still have two more sessions for OT. i feel a lot better now and i want to believe that i’m¬†getting better,¬†well except for a¬†fever spike two days ago.

i can walk now, a few baby steps, without my cane and it felt really great. i hope i could jog and jump soon.

again i want to say thank you to all those who are praying for me and supporting me financially, emotionally and spiritually. thank you so much. God bless all of you.

the journey continues………..ahoo! ahoo! (inspired by “300”) he he he

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so wonderful

Whenever i wake up
the first thing i think of is you
i still can’t imagine
that this really happened to me

i’ve never felt so alive
ever since you walked into my life
something’s come over me
i love what you’ve done to me
i’ve fallen for you
and its all because…

you are so wonderful to me [so wonderful baby]
with the way that you..
with the way that you love me
yes you are so wonderful to me
i love the way
that you love me

your love is so precious
that i’ll never let this..
ever go
ever go, ever go baby
girl, i can’t remember a time when i was ever
so in love

words can never explain
no no no
all the joy that you give me each day
i never thought love would be
the only thing i would need
i really think you are the one
and its all because..

you are so wonderful to me
with the way that you..
with the way that you love me baby
yes you are so wonderful to me
i love you more
that you love me

when i’m with my friends
even when i’m all alone
i think of you baby, i think of you
and when the radio
plays your favorite song
i think of you baby, i think of you

i’ve never felt so alive
ever since you walked into my life
somethings come over me
now look what you’ve done to me
i’ve fallen for you
and its all because…

you are so wonderful to me
with the way that you love me
’cause¬†you are so wonderful to me
with the way that you love me

       so wonderful/devotion

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i found my perfect match

…….for bone marrow transplant! wink!

my younger siblings, godfrey and reese, were both tested positive for bone marrow matching and were considered “well matched”. this great news was relayed to me yesterday. based on the results of their tests, the doctors compared the characteristics of their stem cells to my stem cells and found out that¬†the protein content are similar. thank God!

i know i still have a long way to go as i¬†need to¬†have “complete remission” from my “repeated” chemo therapy first before the allogeneic stem cell transplant. but nevertheless, the reality that i now have genetically perfect matches has raise the positive feeling that my body will definitely accept the donated stem cells.

i had my chemo yesterday, the last for daunarubicin. i still have four more days for ara-c and then i’ll have another bone marrow biopsy. i¬†feel a little low today because i’m having¬† hypercalcemia or high calcium level, which they say is a typical complication from chemotherapy. the nurses¬†are now giving me¬†calcitonin every six to eight hours to lower the calcium level.¬†

i was talking to the oncologist a while ago re: stem cell transplant and he told me that it is not really recommended for all AML patients because of the high risk in complications and in some cases there are no clear benefits. in my case, he said it seems to be appropriate because i failed to achieve a remission following my initial induction therapy.

i had another session with my psychotherapist this afternoon¬†and it was an hour of expressing my emotions using crayons and colored pencils. i was slumped on the floor doing some drawings of the sun, moon, stars, skies, rainbows, clouds and rain. i felt like a kid again ūüôā

oh well, i’m kinda sleepy now so i’ll be taking a nap after posting this entry.

again, i want to say thank you to those who are still offering/whispering prayers for me, those who sent e-cards, encouraging sms, giving me financial and spiritual support—–words are not enough to express my appreciation, i’m overwhelmed.

thank you Lord for Your love and for being true to Your words….i’m pressing on with the journey and i’m trusting You more each day…….continue to do Your will in me.

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my choice

yesterday……. i had my contrasted CT scan in the morning (to¬†determine if i have secondary infection causing the recent fever spikes), another round of chemo during the night, was throwing up, had difficulty sleeping¬†and drank almost two liters of water. whew!

and today…….i woke up feeling some aches and pains in my lower back and i¬†threw up twice already. but i definitely feel a lot better¬†and¬†I’m looking forward to an hour session with my psychotherapist. i’ll also have my ECG later and the usual drawing of blood.

the past few days…..my spirit is actually¬†down and weary.¬†i feel very tired. this continued treatment is starting to drain my positive energy. and oftentimes i feel like i’m just going with the flow without that much conviction. yes, ¬†i’m still praying and holding on to my faith but my being human is taking its¬†toll on me.

a while ago i was scanning/reading some passages from the Bible and this verse caught my attention:

“I am now giving you the choice between life and death, between God’s blessings and God’s curse and I call heaven and earth to witness the choice you make. Choose Life”

                                                            Deuteronomy 30:19

wow! what a perfect verse for me. all of sudden i felt like a comforting¬†hand has touched my head–giving me enough boost to go on with my treatment.

so here i am with my choice: i choose life. i choose to fight. i choose to go on with this journey. i choose to be a betterman.

Comments (17) »

get ready

turn¬†down the lights, baby turn off the telephone. now its time to forget the day you’ve been through. you don’t say much but now we’re here alone. there’s just one thing left to do oh woman

you better get ready to give love tonight. lay back, relax and let me do it right. lady, get ready to give love tonight. just leave the rest up to me.

listen. don’t say a word, baby, i’ve got this evening planned.¬† i’m here for you, body and soul. just put yourself completely in my hands. ‘coz your pleasure is my goal. oh uh oh woman

you better get ready (get yourself ready) to give love tonight. lay back, relax and let me do it right. baby get ready to give love tonight. just leave the rest up to me.

baby better keep the fantasies again. i’m gonna dedicate myself to making each one come true. girl, you’ve given me so many nights i’ll never forget. i want you to have this one just for you. wohoo

oh you better get ready. i’m gonna love you. lay back relax and¬†i’m gonna¬†do it right. darlin’, darlin’ baby won’t just go easy to me. i’m gonna love you. i’m gonna hold you. i’m gonna do you right.

you better get ready to give love tonight. lay back, relax and let me do it right. lady, get ready to give love tonight. just leave the rest up to me.

                                                             get ready/james ingram

hey! i’m scaring you…he he he

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iniibig kita

kulang ang araw at gabi ‘pag kita’y kapiling. kahit ang bukas ay ‘di rin sapat upang mamasdan lamang kita.

labis kitang minamahal, pag-ibig ko’y walang kapantay. kung kaya ko lang abutin ang mga bituin tiyak ito’y gagawin.

malaman mo lang wala nang ibang mas hihigit pa sa pag-ibig ko sa’yo. walang ibang nagmamahal na tulad ko sana’y paniwalaan mo. iniibig kita.

kulang ang araw at gabi sinta, pag kita’y kapiling. kahit ang bukas ay ‘di rin sapat upang mamasdan lamang kita.

labis kitang minamahal pag-ibig ko’y walang kapantay. kung kaya ko lang abutin ang mga bituin tiyak ito’y gagawin.

malaman mo lang, wala nang ibang mas hihigit pa sa pag-ibig ko sa’yo. walang ibang nagmamahal na tulad ko sana’y paniwalaan mo.

iniibig kita. iniibig kita. iniibig kita.

                                   james coronel/iniibig kita

mukhang patapos na ang bagyo. may bahaghari na akong natatanaw. may bagong araw na sumisikat. may bagong umaga na parating.

Comments (16) »