Posts tagged brokenman

my journey continues

Been sitting here in front of my laptop for almost an hour now but i still couldn’t figure out if i will write something here or not. My brain’s on the loose!

Sorry I haven’t posted for a while. After the consolidation chemo, I hibernated to dream land and tried to live a pseudo-normal life. But with my restrictions and “not-to-dos” it’s difficult most of the time. I’ve been continuously doing my therapy and patiently waiting for that time where I would see myself walk on my own two feet again. For now, I can already go up and down the stairs by myself, without a cane (I just cling to the stair handles like my life depends on it, ha ha ha).

I’m done with my liver function test, 2D-echo, lung capacity test, glucose tolerance test, sperm count test and endoscopy. Yesterday, they’ve removed “Hickie” (good grief!) and I also had my bone marrow biopsy. Tomorrow, I have an appointment with my EENT doctor in the morning and my dentist in the afternoon. I’m also taking a close to 20 pills a day and still under a strictly organic fruit, vegetable and soft diet. Whew! I was told that these are phases in preparation for the “my big SCT” next month.

I still feel lethargic at times but I know that I’m getting better every day. I’m still adjusting to these big changes in my life and I really thank God because all is going well so far. There were anomalies in some of my test results but my doctors assured me that they are all manageable and the prognosis are very encouraging. Nothing major has come up yet and my numbers are still okay. And, I have to mentioned that “someone” is making me smile every morning, making my “every day” a better one. Ehem! (I can’t wait to spend some “quality tea time” with her soon).

I’m taking some baby steps, getting myself ready for the transplant while trying to live a somewhat normal life. My hope and trust is in HIM—my Lord, Savior and Healer—-because He knows what’s best for me and I’m completely surrendering my life to Him and letting Him do His will in my life.

Again, I want to say thank you to those who are still praying for me. God bless all of you! And to those who made comments in some of my entries here, thank you so much. Please know that I truly appreciate your visit and although I may not be able to answer all of them now, they are very important to me and I will try to answer them one of these days.

And I want to say a “special” thank you to Pastor Eric C. Maliwat of 702 DZAS. Thanks for the email po and for the prayers. More power to your station.

My journey from brokenman to betterman continues!!! Please journey with me!

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fave song at the moment

I never really understood love
No, not until I saw your face
Then I knew what Id been missing
For all my life

I never let myself believe it
No, not till I looked into your eyes
Then I knew I found all I need
The moment that I found you

I was born to love you
Born to be right here by your side
Through all your darkest nights
I was born to love you
Id do anything to make you mine
Until the end of time

Theres no need to ever doubt it
You set my love free when you walked in the door
You changed everything
Youre all that Im living for

I was born to love you
Born to be right here by your side
Through all your darkest nights
I was born to love you
Id do anything to make you mine
Until the end of time

You changed everything
Youre all that Im living for

I was born to love you
Born to be right here by your side
Through all your darkest nights
I was born to love you
Id do anything to make you mine
Until the end of time

I was born to love you
Born to be right here by your side
Through all your darkest nights
I was born to love you
Id do anything to make you mine
Until the end of time

I was born to love you

 

                              i was born to love you/eric carmen

  

 

 

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OT doki

today is my third day doing my OT and i feel good! 🙂  

occupational therapy or OT refers to the use of meaningful occupation to assist people who have difficulty in achieving a healthy and balanced lifestyle.

according to the OT manual that was given to me, occupational therapists work with a variety of individuals who have difficulty accessing or performing meaningful occupations. they work with individuals who have conditions that are mentally, physically, developmentally or emotionally disabling. their goal is to help their clients have independent, productive and satisfying lives. basically, its about helping someone like me, a leukemia patient on remission, get back my independence and enjoy life as normal as possible. isn’t that great?

so my first OT session which lasted for 3 hours was on dressing, we called it “dress for success”.  i told the therapist that i can put my socks, jockey and pants all by myself but its the upper stuff which i find difficult to put on alone. so he helped me in putting on a patient gown as if i’m going to wear  a shirt and then he gave me a small panel with fabric and buttons and he asked me to button up the material like a shirt. it was difficult and painful but i was able to pull it through after 30 minutes. whew! the process was repeated i think 3 times and  after that he asked me to answer a 3-page questionnaire full of abstract figures. whew again!

afternoon of the same day, i was with my physical therapist and i had fun doing some leg exercises and walking. first it was walking with a walker, then with my cane. i was so proud of myself because i was able to walk farther and broke my own record. after taking a break, i had some stress testing and arm exercises. i was exhausted but i felt really good. seeing those sweats coming out made me smile.

second day of OT is on shaving and it was hard. its been a while since i used my hands that way and coordination was difficult at first. i almost cut the side of my lower lip while shaving my moustache. and i felt really sad when we tried shaving a little of my goatee. he he he.

so today is the third day and i still have two more sessions for OT. i feel a lot better now and i want to believe that i’m getting better, well except for a fever spike two days ago.

i can walk now, a few baby steps, without my cane and it felt really great. i hope i could jog and jump soon.

again i want to say thank you to all those who are praying for me and supporting me financially, emotionally and spiritually. thank you so much. God bless all of you.

the journey continues………..ahoo! ahoo! (inspired by “300”) he he he

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what’s up with me….

i have fever. it has been coming in and going out for a few days now and i’m getting used to the chills, shivers and tylenol. the doctor said this condition is quite “normal” for this phase so i just have to be more patient  😦

my immune system is still not normal so my ID (infectious disease) specialist prescribed 3 anti-infection medicines (anti-viral, anti-fungal, antibiotics) to help my body cope up with the vulnerabilities. my latest blood culture test revealed a negative result, meaning there’s no known infection present. i find it really weird since fever is an obvious sign of infection. again, the doctor said the condition is “common” for this phase and they call it “neutropenic fever”.

my ANC or absolute neutrophyl count was up to .4 today (yesterday it was .2) and my monocytes is up from 55 to 68%. today, i had a bowl of organic green salad and apples for breakfast and lunch. dinner was vegetable soup, a piece of banana and a pear.

i’ll have my spinal tap on wednesday and i’m praying that i’ll have complete remission this time. i’m trying to be positive about it, trying to be cool but often times i can’t stop the negative thoughts from creeping in. i’ve been in this treatment for quite a long time now and i feel very very tired already.

today, i found strength and comfort in a song called “wait” by steven curtis chapman. too bad youtube doesn’t have a video of it yet. you can still listen to the song, though, by hitting this link and then choose song # 7.  the lyrics of the song can be found below:

You wonder when the Lord will renew the strength within you;
You wonder how, how can He use you as you are.
Seems like you’re wasting precious time,

But then a voice comes to remind you (to wait)

Wait, wait, wait on the Lord;
You will understand in time.
Why you must wait,
Wait, wait, wait on the Lord;
Yes He hears you,
But for now you must wait on the Lord

Answers come slowly to your cries of desperation,
But time is His tool, teaching the greatest lessons learned;
So let Him do His work in you,
And watch the miracles come true as you (wait).

And He wants you to know that
They that wait on the Lord
Shall renew their strength;
They will rise up with wings as eagles,
They will run, not get weary.
They will walk and not faint;
That’s a promise to us when we (wait).

i’ve been reading some of the comments and its really lifting my spirit up. thank you for making my “journey” bearable. words are not enough to express  my appreciation. God bless all of you. please keep those prayers coming!

the journey from brokenman to betterman continues!!!!!

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ikaw lamang

Di ko maintindihan
Ang nilalaman ng puso
Tuwing magkahawak ang ating kamay
Pinapanalangin lagi tayong magkasama
Hinihiling bawat oras kapiling ka

Sa lahat ng aking ginagawa
Ikaw lamang ang nasa isip ko sinta
Sana’y di na tayo magkahiwalay
Kahit kailan pa man

Ikaw lamang ang aking minamahal
Ikaw lamang ang tangi kong inaasam
Makapiling ka habang buhay
Ikaw lamang sinta
Wala na kong hihingin pa
Wala na

Ayoko ng maulit pa
Ang nakaraang ayokong maalala
Bawat oras na wala ka
Parang mabigat na parusa

Huwag mong kakalimutan na kahit nag-iba
Hindi ako tumigil magmahal sa’yo sinta

Sa lahat ng aking ginagawa
Ikaw lamang ang nasa isip ko sinta

Sana’y di na tayo magkahiwalay
Kahit kailan pa man

Ikaw lamang ang aking minamahal
Ikaw lamang ang tangi kong inaasam
Makapiling ka habang buhay
Ikaw lamang sinta
Wala na kong hihingin pa
Wala na

                              ikaw lamang/silent sanctuary

                              (video by: xxxnimsay)

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i found my perfect match

…….for bone marrow transplant! wink!

my younger siblings, godfrey and reese, were both tested positive for bone marrow matching and were considered “well matched”. this great news was relayed to me yesterday. based on the results of their tests, the doctors compared the characteristics of their stem cells to my stem cells and found out that the protein content are similar. thank God!

i know i still have a long way to go as i need to have “complete remission” from my “repeated” chemo therapy first before the allogeneic stem cell transplant. but nevertheless, the reality that i now have genetically perfect matches has raise the positive feeling that my body will definitely accept the donated stem cells.

i had my chemo yesterday, the last for daunarubicin. i still have four more days for ara-c and then i’ll have another bone marrow biopsy. i feel a little low today because i’m having  hypercalcemia or high calcium level, which they say is a typical complication from chemotherapy. the nurses are now giving me calcitonin every six to eight hours to lower the calcium level. 

i was talking to the oncologist a while ago re: stem cell transplant and he told me that it is not really recommended for all AML patients because of the high risk in complications and in some cases there are no clear benefits. in my case, he said it seems to be appropriate because i failed to achieve a remission following my initial induction therapy.

i had another session with my psychotherapist this afternoon and it was an hour of expressing my emotions using crayons and colored pencils. i was slumped on the floor doing some drawings of the sun, moon, stars, skies, rainbows, clouds and rain. i felt like a kid again 🙂

oh well, i’m kinda sleepy now so i’ll be taking a nap after posting this entry.

again, i want to say thank you to those who are still offering/whispering prayers for me, those who sent e-cards, encouraging sms, giving me financial and spiritual support—–words are not enough to express my appreciation, i’m overwhelmed.

thank you Lord for Your love and for being true to Your words….i’m pressing on with the journey and i’m trusting You more each day…….continue to do Your will in me.

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my choice

yesterday……. i had my contrasted CT scan in the morning (to determine if i have secondary infection causing the recent fever spikes), another round of chemo during the night, was throwing up, had difficulty sleeping and drank almost two liters of water. whew!

and today…….i woke up feeling some aches and pains in my lower back and i threw up twice already. but i definitely feel a lot better and I’m looking forward to an hour session with my psychotherapist. i’ll also have my ECG later and the usual drawing of blood.

the past few days…..my spirit is actually down and weary. i feel very tired. this continued treatment is starting to drain my positive energy. and oftentimes i feel like i’m just going with the flow without that much conviction. yes,  i’m still praying and holding on to my faith but my being human is taking its toll on me.

a while ago i was scanning/reading some passages from the Bible and this verse caught my attention:

“I am now giving you the choice between life and death, between God’s blessings and God’s curse and I call heaven and earth to witness the choice you make. Choose Life”

                                                            Deuteronomy 30:19

wow! what a perfect verse for me. all of sudden i felt like a comforting hand has touched my head–giving me enough boost to go on with my treatment.

so here i am with my choice: i choose life. i choose to fight. i choose to go on with this journey. i choose to be a betterman.

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